My 7 year old daughter Abby has a rare disease called Williams syndrome that affects about 1 in 10,000 live births. I am Director of Public Relations for the Williams Syndrome Family of Hope and it has become a passion of mine to go to Washington every year and lobby on behalf of ALL rare diseases :)
I would love it if you could share this and help me get there in 2015! The event is in February, and you can visit the RDLA event site at the link below :) Even a donation of $1.00 helps me and helps support Rare Diseases! Please share and help me out :) Thank you!!!
RDLA Conference 2015